Level 9, Worsley Building, University of Leeds, Leeds, LS2 9JTView Map
Our ambition in Leeds is to create a comprehensive and linked data set in for health and care.
However, there are significant issues of informed consent and public trust that we need to properly address in order to make this a reality.
During this event we will hear from big data experts about the benefits of data analytics and proposals for how we might engage citizens in enabling impact in our city.
Phil Waywell will introduce us to the capabilities and expertise within Leeds Institute for Data Analytics (LIDA).
Frank Wood (Chief Analyst for Leeds CCG) will provide an example of how linked data sets have been used in Leeds to compare population health outcomes.
Dr Geoff Hall, Senior Lecturer of Medical Oncology at University of Leeds & Clinical Director at Leeds Institute of Data Analytics, and Kieran Zucker, Honorary Clinical Oncology Specialist Registrar at Leeds Teaching Hospitals Trust, will talk through groundbreaking work to improve outcomes for cancer patients through linking primary care and hospital records.
Chris Carrigan, Senior Research Fellow in the School of Medicine - University of Leeds, will tell us about the Use My Data patient involvement group and lead a discussion about possible models for informed consent in sharing data.
This discussion will inform the city’s approach to consent and we hope will be the start of an ongoing conversation with patients and citizens.
Room 9.06, Level 9, Worsley Building, University of Leeds, Leeds, LS2 9JT
Our city’s Health and Wellbeing Strategy 2016-2021 sets out a clear vision that ‘Leeds will be a healthy and caring city for all ages, where people who are the poorest improve their health the fastest’. This includes maximising the benefits from information and technology as a key priority. The health and wellbeing strand of the Digital Festival is a celebration of the diverse and innovative work taking place to help us achieve our shared, bold ambition for Leeds to be the best city for health and wellbeing.